INFORMED CONSENT FOR HUMAN AND ANIMAL RIGHTS
Patients have a right to privacy that should not be infringed without informed consent. Identifying information, including patients' names, initials, or hospital numbers, should not be published in written descriptions, photographs, or pedigrees unless the information is essential for scientific purposes and the patient (or parent or guardian) gives written informed consent for publication. Informed consent for this purpose requires that a patient who is identifiable be shown the manuscript to be published. Authors should identify individuals who provide writing assistance and disclose the funding source for this assistance. Identifying details should be omitted if they are not essential. Complete anonymity is difficult to achieve, however, an informed consent should be obtained if there is any doubt. For example, masking the eye region in photographs of patients is inadequate protection of anonymity. If identifying characteristics are altered to protect anonymity, such as in genetic pedigrees, author(s) should provide assurance that alterations do not distort scientific meaning and the author(s) are responsible to notify the editor(s) in such instances and editor(s) should so note accordingly. The requirement for informed consent should be included in the journal's instructions for authors. When informed consent has been obtained it should be indicated in the published work.